Dawn Gibson is an author at ankylosingspondylitis.net and has lived with Ankylosing Spondylitis since 2001. She entered health advocacy in 2011 and founded the acclaimed twitter chat group, Spoonie Chat, in 2013, growing it into a thriving community of mutual support, friendship, solidarity for patients, and a place for medical students and doctors curious to hear directly from patients about what it means to be a patient. Over the years, Dawn’s work has grown to encompass many diagnosis groups spanning the chronic illness, disability and neuro-diverse communities, and others experiencing differences that impact their lives in profound ways. In particular, Dawn has focused on the disparities in care and discrimination faced by people of color in the chronic illness community.
Dawn has attended the Annual Meeting of the American College of Rheumatology. She also challenged those at the meeting to engage the serious barriers that women and minorities face in pursuing, retaining, and thriving with a spondyloarpathy diagnosis. In 2017, Dawn began working with The Global Healthy Living Foundation. She developed their Social Media Research Toolkit and was featured in The SAA’s groundbreaking This AS Life Live! video series.
Dawn looks forward to growing independent patient centered advocacy, engaging the community to tell their own stories and to participate in narrative medicine, and to leveraging cultural transformation to eliminate stigmas around chronic pain and all disabilities.
Dawn heads up community efforts for the National Pain Advocacy Center.